GB:
Tell me about
strongatthebrokenplaces.com.
RC: Well strongatthebrokenplaces.com is the website that we
set up to go online when the book was published. On the last page of
the book, we invited people to tell us their stories, including
caregivers. It would be great to have this national
dialogue without sounding grandiose about it, with patients and
caregivers talking to each other; because if there is anything both
Meredith and I have learned in the wake of me doing this book, and I
didn’t really know this before, but people who are sick draw a
tremendous strength from each other.
MV: People reveal their stories and they open up about what
they’re going through. They help other people and it actually comes
full circle in terms of caregiving.
GB: If
there were only one piece of advice you could leave family
caregivers with, what would that be?
MV: I believe in taking it
one day at a time and seeing it as a family affair. As much as you
give, you get back. I think when you keep it in that
perspective, it’s much healthier for everybody involved and it makes
it, in some ways, light lifting because you’re not doing the lifting
alone.
RC: I guess it would be for patients and caregivers to
believe in themselves. I think that people are stronger than
they think they are. I think that we all stand at
intersections or sit in coffee shops and overhear other people
talking and I wish I had a dollar for every time I’ve heard somebody
say in any context, “Oh I couldn’t ever deal with that,” or “I
couldn’t possibly cope with that,” and I always want to turn to them
and say, “How do you know? You’re probably much stronger than
you know. How do you know you wouldn’t rise to the occasion?”
I think that people sell themselves short. People have a reservoir
of strength and resilience that is invisible to them. It’s
something that they cannot see, but it’s available to them and I
think that if people believe in themselves and their strength a
little bit more, the rest can fall into place. Whether it’s
getting through a bad time or whether it’s confronting a doctor,
both of which can be daunting. Both are doable; people just
have to believe in themselves enough. So, I guess that would
be my hope for anybody.
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