I know the value of being
Prepared. Persistent. Professional. Polite.
And even a bit Pushy...
Fearless Caregiver Manifesto
I will fearlessly make my voice be heard with
regard to my loved one’s care and be a strong
ally to those professional caregivers committed
to caring for my loved one and a fearless shield
against those not committed to caring for my
I will fearlessly learn all I can about
my loved one’s health care needs and become an integral
member of his or her medical Care Team.
I visit my Mother's
nursing facility 6 out of 7 days a week. I
request Care Plan meetings every 6 months to
inquire about her general health and
well-being, her medications and an
understanding of their purpose, her
interaction with CNA's, recreation staff,
and other residents. I stay connected to her
needs, moods,and make sure she's receiving
any and all benefits to which she's
In 2004, I enlisted AND
RECEIVED then Senator Hillary Rodham
Clinton's assistance in solving an issue
with the Veteran's Administration which she
solved. The end result, however, was the
revelation that my Father had passed away
years before. The VA was STILL demanding and
taking insurance premiums from my Mother
(for my Father's insurance policy) as she
began to decline into Dementia. When I
contacted the VA directly, they refused to
help me which is why I wrote emails and
letters to my three New York State Senators.
Senator Clinton was THE ONE that actually
came to our rescue. I will continue to be an
advocate for my Mother until her last breath
(or mine!) no matter what. After all, she
did the same for me during my young life.