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LET'S TALK ABOUT IT  | Let's Talk ArchiveCarenotes

Let's Talk

Welcome to Let's Talk About It.  In this special section we will feature the question/topic of the month and provide an opportunity for an interactive exchange that will help find some answers and possible solutions to concerns. If you wish to participate, just follow the link provided at the end of the question/topic and add your comments and thoughts.

Question/Topic for Mar-Apr 2011

What financial support options have you found to help you with your caregiving?

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Name: ann bordnen
Location: West chicago,il
Date: 04/07/2011
Time: 06:41 PM


My husband has severe treatment resistant Deppresion along with PTSD. He is on social security. I work, but between the$650 for insurance and Medications, dr visits etc... we sold our home 4 yrs ago to pay off dept, didn't get all of it. So in the end still had to file chapter 12. I struggle week to weeek to stay afloat. I find little left after the last 7 years to be supportive. ECT had hudge affects on his memory & cognitive abilities, that I can't even imagine him flipping burgers- though he was really very bright. I feel lost & don't know were to turnl. I feel bad because I know so many are worse off by far. I want to be there for my 5grown kids and grandchildren and sometimes wish I could just live my life for them. I trust God for our needs and know it is all in his time, but it is still very hard. I am 56. Working and trying to provide the best I can and support him emoitionally-but I am failing in a big way! Having a really bad week, sorry

Name: Gwen Waddell
Location: White House, TN
Date: 04/05/2011
Time: 10:05 AM


My husband is 52 years old and is very sick. 40 year diabetic, vascular disease, multiple strokes, bi-lateral amputation below the knee. Has to have 24 hour care. I quit my job 4 years ago to take care of him at home. Recently our handicapped van broke down and I didn't have money to have it fixed. A group by the name of H.A.T.S. out of Sumner County has helped us get that fixed. That was huge because it is the only way I have to get him back ad forth to his dr appt. We live off his S.S. check and finances are always tight. I struggle to stay positive daily and feel I am losing that battle.

Name: Donna
Location: Conshohocken, PA
Date: 03/15/2011
Time: 11:42 AM


Our son is 29 and has advanced progressive MS. In our area, the MS Society is a huge financial help, also a company called Liberty Resources and a branch of theirs called JEVS. Also, always stay in contact with your local government officials and kill everyone with kindness even when they slam the door in your face. Keep your foot at the door to prevent it from totally slamming. You can get someone who will listen. It sometimes has taken me years or months and 2 phones to my ears to get to the right people. I love my son so much, I will never stop. I get soooo frustrated I could scream most times. I must take care of our son by myself as my husband is working hard, too, all day. Financial help does help alot, but the mind set I face most days is the hardest thing I deal with. How about you?



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