These are just some of the many responses we received from our Editorial of 03/08/07 -
Clever Caregiver
Hello
Gary,
My five years of caring for my
Dad, age 97, definitely impacted my work life. I
was never a "career track" person, but I always
worked, mostly some type of office work over the
past 35 years. I left a job in 2001 to do
consulting, which offered me more flexibility. Then
in 2002 my Dad and I bought a house together, and
entered into an informal "partnership" whereby he
would provide the income and I would provide the
services. I stopped even trying to work at the end
of 2002, it just was not possible. He has dementia,
and anxiety (OCD) and although I was fortunate that
he was not sick, he was quite high maintenance and
needed a lot of supervision. I'm a single woman,
and our house required a lot of repairs, which also
was a big drain on my time and energy. I had a very
difficult time finding reliable affordable homecare,
so I used home care on a limited basis. Recruiting
caregivers was my second biggest "job" after caring
for my Dad and the house. I cared for him until
last November 2006, when I placed him in a quality
board and care (assisted living) in our area, with 2
live in caregivers for six residents. I am still
"on call" as a friend puts it, visiting 3-4 times a
week. I am happy to say he is doing well, extremely
well considering his age.
I am now back in the job market,
and at 57, it is quite a shock to the system. I
have sent out probably 50 resumes since the first of
the year, and gotten few calls. Salaries are way
down, and benefits are few, except in the largest
companies. I am restricting myself to jobs within
10 miles, to avoid being in a bad position if I am
needed on short notice by my Dad. There is much
traffic gridlock in my area, so logistics are
important and I'm not exactly ready for a
"retirement job" since I am 8 years away from
Medicare and I think 10 years away from Social
Security. I have some personal health issues,
nothing drastic, but I am not able to do what I
could do when I was younger, either, like work as a
retail sales person or food server or even a paid
caregiver - no can do - I don't have the physical
stamina. So I am a bit puzzled frankly how to
proceed.
I do not regret taking these
years off work for my Dad, and I am fortunate since
he does have a small estate which I have preserved
to a large extent by providing much of his care
myself. Depending on what the future holds, I will
likely inherit something from his estate, since I am
his only child. But I am not "set for life" and
figure I have to work for another 10 years, God
willing, and at this moment, I have no idea what
that is going to look like.
L.M.
Today is
the one year anniversary since I went into my
husbands room and found him in a heap on the floor.
He had suffered a stroke during the night - when he
got up to go to the bathroom, I believe. This
stroke came approximately three weeks after he had
4-way bypass surgery. Anyhow, that stroke changed
the course of of lives forever. He had worked for
the government in air traffic control for 30 plus
years when the government decided to privatize that
part of the air traffic system. Lockheed-Marten
took over the flight service system and everyone was
offered a job, with the same pay they had been
making in the government, for a minimum of three
years. We were in seventh heaven. He was able to
retire from the government one day and the next he
went to work for Lock-Heed at his old pay. We
decided to make the most of the situation and we
knew that there would be something to do every
week-end. Prior to the privatization we had bought a
travel trailer to prepare for our retirement and a
Yukon XL to pull it with - both with payments.
Then the morning of March 1st
came and I knew all of our plans would not come
true. My husband had a severe stroke and lost just
about everything. He got a lot of it back but has
paralysis on his right side. He is able to walk
with a cane; he has no use of his right arm and the
biggest thing is that he has aphasia so he is unable
to carry on a conversation. Therefore, he is unable
to work and that has cut our income back by
approximately $95,000. We were not set-up for our
retirement. Now we have spent all of our savings
on medically related bills and they still keep
coming in. I had to take him out of one therapy
place because they charged so much that our 15%
after insurance paid was still $65 per hour just for
occupational therapy. In addition to the cost of
therapy we had to travel almost 50 miles one way to
get there and with gas at $2.50 a gallon the
expenses keep piling up. We can't afford to pay for
any outside help. I barely have enough for
groceries, gas and medicine after we pay for our
bills. It will take three years to get out of
this. My only hope is that nothing major goes wrong
in that three years. I will say we are lucky he has
the pension. If he was younger we would have been
without income for the past nine months. Also I
believe that when you work for the government you
don't get short term disability I think you have to
use your vacation and sick time. So if you don't
have any hours coming you don't get any money.
Anyhow, this is our story. Not as bad as some. We
just weren't good spenders - especially my husband -
and now we are paying for it. If we only had that
three more years.
C.G.
Dear Gary,
This past year has been a
difficult one. My husband of 57 years was diagnosed
with lung cancer. He is now on his second round of
chemo after the original chemo treatments and seven
and a half weeks of radiation. Trying to be there
for him and running the agency, as well as serving
on a number of Boards and Commissions,has been a
real challenge. Many who head up these FIA agencies
have similar problems. We often work on a
shoestring, minimal staff and maximum needs.
Fortunately, I have a close family. Many do not.
For me, the prayers and support of my church, my
friends and my faith has made it possible to see
that all our programs have continued to minister to
seniors. Our volunteers, the backbone of any FIA
program have been super.
My story is not unusual, but it
has impacted many lives. I co-host a live call-in
talk show three times a month. It's an hour show
and we have wonderful guests who share resources and
expert help to our viewers. Thus, I have been
blessed with a wonderful support group.
D.