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I will fearlessly learn all I
can about my loved one’s healthcare needs and become
an integral member of his or her medical care team.
Fearless Caregiver Manifesto
This week’s discussion of Fearless
Caregiver Manifesto Principle Five dovetails
perfectly with a conversation we had at the Orlando
Fearless Caregiver Conference last week. First of
all, thanks to our wonderful friends – the Central
Florida professional, advocate and family caregivers
who joined us for the day. Thanks also to the
members of our dedicated and knowledgeable morning Q
and A Panel of Experts and our exceptional Central
Florida Caregiving Thought Leaders Panel. And
congratulations to the Senior Resource Alliance for
receiving the 2013 Central Florida Community
Fearless Caregiver Award. Look to this space in the
near future for pictures and videos of the event.
The conversation in question was
about how challenging it is at times to get our
loved one’s doctors to consider hospice care when
necessary. So let’s review the facts:
What is hospice care?
Hospice is a philosophy of care.
It treats the person rather than the disease and
focuses on quality of life. It surrounds the patient
and family with a team consisting of professionals
who not only address physical distress, but
emotional and spiritual issues as well. Hospice care
is patient-centered because the needs of the patient
and family drive the activities of the hospice team.
Where is hospice care
Hospice is a concept of care. Not
a place. In fact, the majority of hospice care
in the nation is provided at home, but hospice can
be provided in hospitals, stand-alone facilities or
even in penal institutions
Why is it sometimes a
challenge for doctors to consider hospice care?
I am afraid too many caregivers
and even physicians don’t consider hospice soon
enough when necessary. And I can tell you
firsthand just how important hospice can be—not
only for your loved one’s care, but also for your
own peace of mind.