My husband Bud had Huntington’s
Disease. I was his caregiver. One of the hardest things for Bud was
to have to depend on me or anyone else for toileting and hygiene.
Bud hated not being able to get into the shower any longer, and I
was determined that this was one thing he could continue to do---we
just needed to make a couple of adjustments. Bud’s bathroom was a
half bath---toilet, sink, and a small shower. The bathroom was so
small that when you tried to get into the shower, the door would
only open about half way. I would help Bud get into the bathroom,
close the lid on the toilet and sit him down. I would undress him,
then maneuver him into the shower.
Bud had reached the point that he
could no longer stand in the shower, and resigned himself to the
fact that he would have to have bed baths, giving up the pleasure of
being able to shower. I decided that he did not have to lose this
also, that all I needed to do was put a shower chair into the
shower, then he would be able to sit on the stool while I helped him
with his shower.
With this in mind, I purchased a shower chair and a
hand held hose, to replace the shower nozzle. Once I had the shower
nozzle replaced with the hose, I helped Bud into the bathroom, sat
him down as we usually did, got him undressed, then went to put the
shower chair into the shower. Upon reflection, it does seem
reasonable that someone would have FIRST put the shower chair into
the shower, knowing that space was very limited. But, no....not me.
Bud tried to tell me that he did not think the shower chair would
fit, but being a very stubborn person, I was determined to prove
that I was right and it could be done.
Of course, since the door
would open only half way, the chair was too wide to slide through
the door. Bud sat there in his birthday suit chuckling and saying,
“I told you.” This of course, only made me more determined than
ever.
After about 15-20 minutes of battling the chair at different
angles I hit upon the solution---lift the chair over my head, step
into the shower, then set the chair down. The idea seemed simple
enough, in theory. I grasped the chair, hoisted it over my head, and
started through the half open door. Oh no,...the legs hit the top of
the door. Simple, all I had to do was squat, with the chair over my
head, duck waddle into the shower, stand up, and set the chair down.
But that was not to be.
In my eagerness to prove that this could be
done, I had neglected to measure the dimensions of the inside of the
shower stall. Needless to say, there was not enough room for me to
bring the shower chair down from over my head and the battle was on.
During the next hour that chair had me pinned in some of the most
peculiar positions one could imagine. I was pinned under the chair,
pinned against the wall, my head caught between the arms of the
chair and pinned against the shower knobs. And Bud?? He laughed. He
laughed so hard that he slid off the toilet. So there I was pinned
in the shower by a shower chair, with Bud lying on the floor in his
birthday suit (and unable to get up by himself), and he continued to
laugh. What a sweet, wonderful sound that was!
I was finally able to
maneuver that chair out of the shower, past Bud, and into the
bedroom. I then helped Bud get up, and with a look of resignation on
his face, stated very matter-of-factly, “I guess that means no more
showers, huh?” I said, “Are you kidding?” and led him into the
shower. He protested saying, “No I will fall.” I said you are not
going to fall and you are going to have your shower. I stepped into
the shower with him, closed the door, and held him up while I gave
him his shower. Bud is gone now, but whenever I remember the battle
with the shower chair, and I see in my mind’s eye the joy on his
face, and hear again his laughter, and I smile.
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