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CMT - Charcot-Marie-Tooth Channel

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Growing Up With CMT
By Laura Moquin
(Page 4 of 4)

It turns out one semester wasn't good enough, but I truly learned a lesson the hard way. I would go to bed thinking about that lie, I still wake up thinking about that lie, I've prayed for forgiveness. I hated who I was reduced to. Recently, I've began to realize that it's okay. I made a wrong choice, but I'm truly sorry and I can't let my lie haunt me anymore.

I've learned that when you are 16 years old and backed into a corner, you'll say what you need to say. That experience has taught me that it's vital to my survival to be okay with my disorder. I don't have to explain myself to anybody.

When I can't do things now, I no longer see the need to make up an elaborate lie. A simple "no, I can't do that; I have a muscle disorder," will do. Having CMT has taught me many things. At first, it taught me to be a good liar, but eventually taught me to be compassionate and to be a better person.

I guess I'm writing this as an act of contrition... as passing down a hard lesson learned. The only way to make others okay with CMT is to raise awareness and no one can do that if they are not accepting of what they have. Yes, it can be a terrible disease, but I am grateful every day for the lessons it has taught me. I am grateful for my CMT because it has helped me to become the person I am, and I have dedicated my life to helping others feel like they don't have to lie. It's okay to be who you are, CMT and all.

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