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CARENOTES | Past Carenotes | Let's Talk

Carenotes

Welcome to CareNotes. In this special section we will feature a reader's letter and provide an opportunity for an interactive exchange that will help find some answers and possible solutions to concerns. If you wish to respond to this letter, simple follow the link provided at the end of the letter and add your comments and thoughts to our CareNotes Board.
  

This Week's Carenote - 07/07/15


My wife and I find ourselves in the unenviable position of caring for our 42-year-old daughter who has breast cancer for the fourth time. While we have had much support from friends and family, there are few resources like yours that present information and experiences from others in the same situation. Caregiver.com is an excellent resource for those who are taking care of an elderly loved one. We are wondering if anyone who visits this site might offer suggestions and support for caring for an adult child. Thank you
 
Stephen





Shared by: Michelle
Washington
7/7/15

You might want to see if your local area has a Family Caregiver Support Program--the program is designed to help support unpaid family caregivers like you and your wife. Most programs can offer services such as caregiver education, support groups, counseling and respite care.

If your daughter is needing personal care, she might qualify for a Medicaid-based in-home care program (if your state has such a program). The state might be able to help her pay for a caregiver, or might even pay you or your wife to be her caregivers, which might help a bit with expenses. For help in seeing if this is a possibility, you might look to a social worker at the cancer care center/hospital where she is receiving her treatments. Or call your local Aging & Disability Resource Center for info.

Is your daughter going through treatment with this 4th round? If she's decided not to continue with treatment, she might qualify for Hospice services. Hospice can provide wonderful services and supports, but many people wait too long to get on Hospice and miss out on all they have to offer.
I hope you are able to connect to services and supports as you support your daughter, who is so young to be going through this. My heart goes out to you at this difficult time.


Shared by: Karen
Pennsylvania
7/7/15

You can check with your local American Cancer Society to see if they have any services or support they can offer you. In our area, they offer transportation to chemo and radiation and some help with supplies needed. Or check with your local county human services offices to see if there are any adult services programs which may offer some help or support to you. Her Oncologist may also be able to link you up to a support group for caregivers which may offer some ideas on local supports.








 

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