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CARENOTES | Past Carenotes | Let's Talk


Welcome to CareNotes. In this special section we will feature a reader's letter and provide an opportunity for an interactive exchange that will help find some answers and possible solutions to concerns. If you wish to respond to this letter, simple follow the link provided at the end of the letter and add your comments and thoughts to our CareNotes Board.

This Week's Carenote - 4/22/14


My husband was recently diagnosed with MS. I have always taken care of my sister who is a brittle diabetic. Now I am researching all sites with MS caregiver info. Anyone that has info on the beginning of this please feel free to post suggestions.


Shared by: Myrna Beth

Contact the MS Society the MS foundation and any other resources available. Finde their numbers online then I would suggest calling them personally. They will talk with you and send you many pamphlets that will help explain MS. Their are different types of MS. Their is also an MS magazine that you can have delivered to your home. This magazine keeps you updated on newest medications and gives tips on making life easier. It's hard to tell someone what to expect because many patients have mild symptoms while others may experience more debilitating symptoms. Best of Luck!

Shared by: Susan
High Point, NC

I have been diagnosed since Dec 1995...but as with ALL MS people, had it for many years before diagnosis......#!

Seek GOOD medical advise from a trusted MS neurologist.

Get on medication now....I am on Betaseron which has been around for a LONG time - and NO, the shots do not hurt if you let the designated area DRY before injection. TINY needle and just below the skin. There are many options available....listen to your neurologist!

KEEP ACTIVE! MOVE MOVE MOVE not necessarily run a mile, but do some mild exercise to keep the muscles toned.

Eat healthy - not vegetarian or organic......just healthy.

REST when you are tired.

Do NOT get HOT (if possible)......there are cooling vests & collars available - see MSSA.

Also contact local MS Society, (national) MS Foundation and MSSA. ALL will give you really great advise! You are in my prayers!


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