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CARENOTES | Past Carenotes | Let's Talk

Carenotes

Welcome to CareNotes. In this special section we will feature a reader's letter and provide an opportunity for an interactive exchange that will help find some answers and possible solutions to concerns. If you wish to respond to this letter, simple follow the link provided at the end of the letter and add your comments and thoughts to our CareNotes Board.

This Week's Carenote - 12/27/11

How do I go about finding a support group for caregivers? I am the caregiver of my mom with Alzheimer’s. I work and take care of the home. She has gotten worse and at times it is very trying. I have not found a local support group, but I feel there is one. Any suggestions?
 
[Editor’s Note:  If you haven’t already done so, please look on our Web site, caregiver.com/local resources, for a caregiver support group near you.]

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Name: Renee K
Location: Tampa FL
Date: 05/22/2012
Time: 12:07 PM

Comments

I work for a home health company called Visiting Angels we help families with Alzheimers. We also work as patients advocates and have access to many resources within the community. Just look up your area online and they will help you.


Name:
Location:
Date: 01/16/2012
Time: 12:29 PM

Comments

Look up the Alzheimer's Association phone number in the phonebook or Google it on the computer if you use one. They will be the starting point for whatever you need to know.


Name: Linda Gilman MS, LPC
Location: Bettendorf, IA
Date: 12/27/2011
Time: 02:45 PM

Comments

Wow, I wish you lived in my area. Go to the Alzheimer's site. They have various support groups in the USA. I acknowledge you for asking this question. Nothing is more important than having support of others who have similar concerns. Good luck. Linda Gilman MS, LPC.


Name: Sandy Davis
Location: Maryland
Date: 12/27/2011
Time: 08:02 AM

Comments

For yourself, as your mother's caregiver, contact your local Alzheimer's Assn. They will be able to put you in contact with a local support group. My mother has had Alzheimer's for the last 12 years. She was able to live at home with my father as her caregiver until 3 years ago and now lives in a nursing home. As the disease progresses, the brain forgets how to get up and go the the bathroom, feed yourself, etc. Sometimes it seems like changes occur daily or weekly. We purchased a paperback book, "The 36 Hour Day", which became our daily guide for caregiving. When you see a change or have a question you can look it up in this book for understanding and guidance. Just remember, you can't do it all, so ask for help and make time for yourself.


Name: Ann
Location: Wheeling WV
Date: 12/27/2011
Time: 05:37 AM

Comments

In addition to the Editor's Note, You have several resources to check on the availability of support groups: Alzheimer's Association - national office and your state chapter Your local senior center, Area Agency on Aging office or state aging office (many have special assistance - programs, support groups, information, assistance - for caregivers) Local hospitals Nursing facilities or assisted living facilities may host support groups, esp those with special care units Adult day service programs often sponsor support groups Local hospice agencies The dynamics of support groups vary so you may find that one suits you better than another. Hope this is helpful.


 







 

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