The Jane Gilbert Interview
Gary Barg: Our family caregivers are dealing
with all sorts of healthcare issues. But I find one of the most
challenging is when the caregiver’s loved one is living with ALS,
commonly known as Lou Gehrig’s disease. Can you tell me the importance
of family caregivers to people living with ALS and what the Association
does for them?
Jane Gilbert: We have a series of recommendations
that we certainly provide for people who are newly diagnosed. The thing
that we recommend they do as quickly as they can is get to a certified
center and start the process of working with good qualified clinical
professional people who can really help not only the person with the
disease, but their caregiver, as well. The clinical support not only
improves the quality of life for the patient and their family, but it
also extends the quality of life. We have 34 certified centers across
the United States and many other clinics that we work with that provide
not only that support, but also educational information ...more
Who are they and
do I need one?
By Sandra Fusion, Staff Writer
There are so many benefits, both financial and
assistance-oriented to which individuals are entitled. These include
community-based programs, state or federal assistance programs (such
as Social Security, Medicare, and food stamps), as well as retirement
and insurance programs to name a few ...more
Let's Not Talk
About That Now...
By Jennifer Kay
Too often families do not like to talk about
issues surrounding death, dying and funerals. Why should they ask?
Soon enough we all will have to deal with these issues. So what’s
wrong with waiting till the need arises? ...more
10 Steps to Kidney Health
Recent studies indicate that 26 million American
adults suffer from chronic kidney disease (CKD) and that the number is
likely to rise unless Americans get serious about prevention. March is
National Kidney Month and World Kidney Day is March 14. This is the
perfect time for responsible adults to begin a kidney-health program by
learning about the risk factors for CKD.
Primary risks include: diabetes; heart disease;
high blood pressure; a family history of kidney disease; and age
Secondary risks include: obesity; autoimmune
diseases; urinary tract infections and systemic infections ...more
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My husband is a stroke patient. Thankfully, he can still walk
(with a slight limp), understand almost everything said to him, and is able
to take care of his own personal needs. He’s having speech therapy and that
is going fairly well. He is on several medications—about nine pills per day.
He HATES taking any type of pill and always has. He becomes very angry when
he has to take the meds, and becomes very angry anytime I don't understand
what he's telling me. I feel that depression is a factor, but putting him on
another med would probably make bad matters worse. We have been married 46
years and I love him more than ever, but the emotional stress is really
getting me down. What can I do?
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