From Ruth in Indiana:
Use "Light Therapy" for the fall and winter months. It’s great for seniors and just people in general that
have to stay home for one reason or another.
Joanne in Rhode Island: My husband
recently passed away and I cared for him at home for
four years. He was non-ambulatory, had a feeding tube
and for the last two years, a trach. Despite this, we
did fine except for the constant stress of dealing with
DME vendors, insurance companies and some medical
providers. Having to always worry about not getting the
things I needed for him was debilitating. Yet all I ever
hear about is how tired and burned out I must be and in
need of a night out or a vacation!
I stayed with my husband about 18
hours a day when he was in the hospital (no admissions
for past 27 months), not only to attend to hygiene and
skin care needs, but also to summon help as needed.
Everyone who is telling caregivers to de-stress should
instead focus on the sources of stress within the
medical/health industry! One of the worst examples was
when doctors and nurses would exclaim (in two different
hospitals) that they had never seen anyone whose skin
was in such perfect condition. Yet, unless I did all his
changing and bathing myself and used all my own skin
products, he was in danger of breaking down whenever he
was hospitalized. Plus, I shouldn't have to fight to get
him an appropriate mattress or wait for broken skin to
appear in the hospital.
So, what I needed and didn't get,
at least not without prolonged battles, was insurance
coverage information, a responsive doctor and DME
providers who provided what he needed (and had coverage
for) without bait and switch techniques.
What I got and didn't need was
everyone telling me I need a rest. I have all the time
in the world now that he's gone and I miss him terribly.
The best ideas and solutions for taking care of your loved one often come from other caregivers.
Please post your ideas and insights and we will share them with your fellow caregivers.