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Caregiver News
January 28, 2014  |  Issue #683  
  Caregiver.com Today's Caregiver magazine Fearless Caregiver Conference Recommend Us  
From the Editor's Pen Gary Barg • Editor-in-Chief • gary@caregiver.com

Gary Barg
The Allison Moore Interview

Gary Barg: Allison, tell me about the work of the CMT National Resource Center and their Hereditary Neuropathy Foundation.

Allison Moore: The Hereditary Neuropathy Foundation is the 501(c)(3) non-profit organization that I founded in 2001 after I ended up with severe onset of Charcot-Marie-Tooth. CMT is the number one inherited neuropathy. It is a progressive neuromuscular disease and can be extremely debilitating. The organization’s mission is to increase awareness, educate, support the community and fund research leading to treatments to halt, reverse and ultimately cure the many forms of Charcot-Marie-Tooth.

To date, we have funded well over a million dollars in research. We have a research model called Therapeutic Research and Accelerated Discovery which is a collaborative effort among academia, government and industry to develop treatments. We believe that there are hundreds of thousands of people walking around with this disease and they do not even know it, because the range of symptoms can be very mild to severe  ...more


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Don’t Let Eye Disease Slow You Down

Thanks to advances in modern medicine, personal care and nutrition, there has been an explosion in the quality of life that adults are able to enjoy as they age. The pleasure that stems from having freedom and independence is immense, so what would you do if you were unable to enjoy the same things in life because of a loss of vision? ...more

Caregiver New Year Special


Pity!? - What Children With
Special Needs Really Need
By Helen Rauch-Elnekave & Ph.D. Pediatric Psychologist

Children who are chronically ill, physically challenged, or who suffer from learning difficulties need our RESPECT, not our PITY. When we pity children, we feel sorry for them, indulge them and, in the process, actually show them disrespect.  ...more

Practical Safety Tips for Avoiding Spinal Cord Injuries

Spinal Cord Injury Prevention Safety Tips:

  • Always wear a seat belt

  • Secure or buckle children into age - and weight - appropriate child safety seats

  • Secure or buckle children under 12 years old in the back seat to avoid air bag injuries

  • Never drive under the influence of alcohol or drugs

  • Do not ride in a car with a driver who is impaired by alcohol or drugs

  • Prevent others from driving while impaired by alcohol or drugs

  • Do not use a cell phone or any item that may be a distraction to your driving ...more

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CareNotes

From Silvia:  Can someone give me tips on how to transfer a double amputee from bed to chair and toilet? I am looking for any sort of help please.

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