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Caregiver News
January 14, 2014  |  Issue #679  
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From the Editor's Pen Gary Barg • Editor-in-Chief • gary@caregiver.com

Gary Barg
The Kimberly Haugstad Interview

Gary Barg: Tell me about the goal of Hemophilia Federation of America and your services and programs.

Kimberly Haugstad: Our mission is to assist and advocate for people with bleeding disorders. We are first and foremost an advocacy-based organization, and that could be from a legislative or regulatory and administrative perspective or from a personal perspective. We are not representing anything except the patient families. From a social perspective, that includes education on living and coping with and understanding your disorder.  It includes peer networking to bring folks together on a regular basis.  And we invite folks to come and get involved and be a part of this community and learn and then share with others.

Gary Barg: What is hemophilia?

Kimberly Haugstad: Hemophilia is a bleeding disorder and essentially your ability to clot is compromised because one of the clotting factor proteins that is in your blood is missing or it is limited in its expression. A person with hemophilia is unable to completely form a clot and, therefore, any type of injury, untreated, can go on continually  ...more


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Glaucoma on the Rise

It’s the first month of the new year — a time when more than 40 percent of American adults make one or more resolutions. What are your resolutions for the new year? Losing weight? Quitting smoking? How about learning more about glaucoma and how you can protect your sight?  ...more

Caregiver New Year Special


Maintaining Nutrition
When They Can't Sit Down to Eat
By Barbara Williams, RN, BSN

It is difficult to plan for meals when the person you are feeding can’t sit down and enjoy a meal. This is often the case during the hyperactive stage of dementia. It is extremely frustrating for the caregiver and patient alike  ...more

Pill Organizers
By: Jennifer Bradley, Staff Writer

The AARP says that 78 percent of caregivers performing medical or nursing tasks also are managing multiple medications for a loved one. Thirty-one percent of the care population takes one to five medications; 46 percent, five to nine; and 18 percent, 10 or more medications. It's no big secret to caregivers that organization is key when keeping track of medications, their doses, refills, timing, etc. It can be a job in itself. In fact, a 2011 study by Northwestern University's Feinberg School of Medicine found that 60 percent of caregivers made errors when sorting medications into pill boxes  ...more

CareNotes

From Sandy:  I receive your newsletter and have gotten valuable information from it.  We are currently experiencing an extremely difficult time with my father who is in assisted living along with my mother.  He has better abilities than she, though his eyesight and mobility are issues.  Even if it were not for her limitations, which are growing more and more, he would no longer be able to live alone.

Since we made the change to assisted living, he has felt "trapped."  He has never aged "gracefully" and doesn’t accept his limitations; thus he gets hurt, makes bad decisions, and gets very grumpy.  He is not just belligerent, but almost violent when he does not get his way. We fear that the facility will have to make a decision to move him out if he keeps this up. He has been violent at times, taking it out on my defenseless mom, my sister, and sometimes the nursing staff.  We all know that there are no other options than for him to be where he is, and he knows this, too.  But he hates where he is and we don’t know what to do with his mood.  He is on anti-depressants and we have been juggling those for several months.  This has helped, but nothing can "fix" things the way he wants them to be.

My sister and I are still very involved in their care; nothing like we moved them in and left them there. There is just no reasoning with him when he gets this way, and we know it is out of frustration of not being in his own home, not driving, and not having the freedom of coming and going as he pleases.

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