Gary Barg: Tell
me about the clinical trial
Harry Johns: Gary,
I worked in the health field for a
long time and as you well know,
medical science is impeded by the
lack of participation in clinical
trials across medical research. That
is particularly problematic for
Alzheimerís disease. We saw an
opportunity to reach out to people
that we touch every day in our
communities from our chapters and
try to get more people engaged in
doing things that would benefit
other people down the road.
Any of us who
have been touched by this disease do
not want to see others affected by
it. We know we cannot eliminate it
immediately. But if we can make an
impact on it, we at least leave a
legacy for the people we have cared
Gary Barg: In
an Alzheimerís trial, there is the
need for a caregiver to participate
as well and serve as an in-home
coach for their loved one. To
educate that caregiver is actually
really supporting the connection
between research and the public.
Harry Johns: Oh,
I think you are absolutely right.
The caregiver plays a critical role
in the decision to participate and
in terms of ongoing advice and care
because, as we all know, the person
is diagnosed impaired...read more
How To Be A Parkinson's Caregiver
By Jennifer Bradley, Staff Writer
As any caregiver knows, Parkinsonís disease is both chronic and progressive. It persists
over a long period of time and the symptoms worsen. Often the disease has been present for many years before
active care even is necessary. This fact alone can bring many challenges along the way. A loved one secretly
may have adapted their life to this condition, hiding any symptoms...read more
The Value of Friendship
By Marlene Pyle
Iíve learned many things since I began taking care of my 85-year-old grandmother three years ago.
I know which supermarkets offer senior citizensí discounts on which days of the week. I know which drugstore has the
most helpful pharmacist, and which beautician will fix my grandmotherís hair just the way she likes it. But one of the
most important things Iíve learned isnít really about caring for my grandmother; itís about caring for myself...read more
Forty-Eight Mental Breaks for Caregivers
Caregiving takes a lot of time. Even if you had spare time to daydream in the first place, itís
probably gone now. However you must give yourself a mental break once in a while. The following list is intended to
make you think back to a simpler time in your past, and possibly one in your future. Use them sparingly (one at a time),
or be a glutton (overdose on all of them at the same time). The goal here is to make you feel better. If you really want
to make yourself feel better, use this as a ďto doĒ list...read more
We are providing care services for a person who has quadriplegia and has to be turned every two
hours while sleeping at night. Caregivers can fall asleep sometimes and need to be awakened if this ever happens.
Is there a device/technology that can be used (outside of a baby monitor) to alert the caregiver to wake up? Some
kind of remote contact buzzing device will be excellent. Thoughts?
Answer This Week's CareNote
Support Group Directory. Click
here for information about any caregiver support groups in your area.
need your help.
Please add information about your local support
groups to our Support
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