You made some news recently when you
tweeted from your mom’s hospital
bedside for the week before she
passed last month. And I have to
tell you, one thing I really
appreciated as a family caregiver
about your tweets was that they
introduced me to your mom, Patricia
Lyons Simon Newman Gilband.
Scott Simon: Somebody referred to that as a
railroad car. She had three
She is funny, loving, talented, fun.
I honestly wish I could have known
her. I always think that introducing
our loved ones to their care
professionals as more than a patient
in ICU bed 207 is really important
for all involved—for the
professionals, for you, for your
loved one, for the humanity of the
situation. So, I am wondering what
was the spectrum of responses that
you received since your tweets last
The messages I have gotten have been
overwhelmingly positive. I also know
at the same time there has been a
little bit of criticism; but really
I think it has got to be less than
one percent. And I am not sure there
is much I could say to those folks
in any case. I think a lot of them
seem to feel that it is
inappropriate to share any kind of
deep human emotion. If that is the
way they want to live their lives,
that is fine. I think what has been
very nice is for me to hear from
people who say something like, “I
held my mother’s hand tonight
because of something you wrote.” Or
“I made time to see my mother today”
or “I called my mother today because
of something you wrote.” And, I
guess I am prepared to say that if
my mother’s life and the story of
her death could contribute to that,
I think that is a wonderful thing to
have been able to put into this life...read more
Hyperbaric Oxygen Therapy
By Angela Blakely, Staff Writer
Hyperbaric Oxygen Therapy (HBOT)
is a pain-free routine where a patient enters a
chamber with high air pressure which results in an
increase in oxygen flow to the tissues in the body...read more
Recovery Room Kit
By Hana Kim
Three years ago, my mom underwent major surgery to
remove a brain tumor. The day of her surgery felt like
the longest day of my life. Because she didn’t have any
family members in the area...read more
To Trust or Not to Trust?
By Susan Piette, Esq
estate planning with my clients, I
am regularly asked about living
trusts or, more precisely,
“revocable living trusts.”
Many people have heard of them and
readily admit they really don’t
understand the marketing information
that they have received in the mail,
heard on the radio or at an event on
this subject...read more
My mother doesn't pay attention to taking her meds, is very combative, and will not follow simple directions for daily living, but is mentally fluid. She has diabetes and now a minor TIA. Her home health aide buys her éclairs and we cannot stop her because my mother hired her. My mother was told her artery is 70 percent blocked in her neck. She is in her mid-eighties.
We do not want to place her in a nursing home because we promised her she will stay at home as long as she is ambulatory, which she still is, thank God. We are trying to respect her dignity, but it is out of hand. It is total madness living in the house. She will not wash, prefers to stay in soiled clothes. Says she doesn't want to be a bother. A lot of control issues. Does anyone have any insight and recommendations? Please HELP!
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