Gary Barg: I appreciate you
talking about your dad. I think when
we talk about our families, and
especially people in the public eye
like yourself, it really makes a
difference and brings people out who
may be going through this. It is
really a great service that you do.
Could you tell us what PSP is?
Patricia Richardson: Progressive
supranuclear palsy (PSP) is a
neurodegenerative brain disease that
has no known cause, treatment or
cure. It affects nerve cells that
control walking, balance, mobility,
vision, speech and swallowing. We
used to say movement disorder, but
we have decided now to refer to it
as a disease. That’s what it is and
when you say a movement disorder, it
does not sound as serious and deadly
as it in fact is. It is a fatal
disease. It is a fatal brain
We did not even
know my father had it, probably for
the first five years. Towards the
last probably full year he had it,
and maybe even longer, I used to say
to people that it was like he was
mummified inside his body. He had
the kind of PSP where the muscle
cramps basically froze him. He was
unable to move his face, eyes. Of
course, he could not speak for more
than the last year, probably the
last two years, and he had a lot of
difficulty swallowing...read more
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I am a caregiver and looking for tips to
deal with the anger and frustration of having to repeat the same
thing 100 times. Help me deal with this. My father is 85.
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