Gary Barg:
Can you tell me the importance of
family caregivers to people living
with Parkinson’s, and what the
foundation does to help Parkinsonian
family caregivers?
Joyce
Oberdorf: Absolutely,
Parkinson’s is a chronic neurogenic
disease. That means that it is a
marathon. It is a marathon on the
part of the individual affected and
it affects the entire family. So the
entire family, over time, over five
years, ten years, decades, gets
involved in ensuring that this
person is mobile, can get around,
and they are not falling. Ensuring
that they are not depressed, which
can also happen. Their mood, their
memory—it is a disease that affects
every part of the body and, really,
every part of the family.
So at NPF we
recognize that. We have a
comprehensive care model of an
approach to care with disease. We
promote this through our Centers of
Excellence Network, and also through
our Chapter Network throughout the
U.S. And in both of those, we tend
to offer a comprehensive care
solution that focuses on the entire,
the holistic approach, the
individual and their needs. And the
holistic approach to the family. Our
chapters will offer education
symposiums, they will offer support
sessions for caregivers, sharing
circles. For people with the
disease, they will offer exercise
and wellness classes...read more
Take Care
Gary Barg
Editor-in-Chief
gary@caregiver.com
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Feature Article
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Respite: Enjoy a Guilt-Free Time-Out By Kate Murphy, RN
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Why is it that the words
“respite” and “guilt” seems to go hand in hand? Why
do we as caregivers feel we are somehow failing our
loved one by admitting that we need help, need time
to recharge our batteries, or just need time to play
a bit? Perhaps because so many of us still hold on
to the myth that says the caregiver has to be...read more
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Guest Column
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Traveling With a Person Who Has Alzheimer’s
By Joyce Simard
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Being a caregiver doesn’t mean
you have to give up life’s pleasures. You can still
enjoy traveling with someone who is in the early stages
of Alzheimer’s disease; it simply requires planning...read more
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Caretips
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Dealing with Hearing Loss
Imagine trying to have a conversation and constantly having to ask your companions to repeat themselves; or not being able to participate in a group discussion in the common room...read
more
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Carenotes
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My 63-year-old, diabetic father-in-law
has been staying with us a lot recently and his health is
getting worse. If he wasn't with us today, he may have died
due to the neglect of his family. What do I need to do in
Kansas to become his caregiver? No one else in the family
has the means to keep an eye on him or have him live with
them. I'm still upset because we almost lost him. We have
room in our home for him, but I wasn't sure if I can take a
course as a caretaker and bring in addition income to
support an extra non-working adult. We can't support
him on our own, but we can't leave him unattended either.
Please help me.
Stephanie
Answer This
Week's CareNote
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