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Fearless Caregiver Newsletter
 Tuesday June 25, 2013 - Issue #142

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From The Editor

Gary Barg - Editor-in-chiefAn Interview with Joyce Oberdorf
President and Chief Executive Officer
of the National Parkinson Foundation

Gary Barg: Can you tell me the importance of family caregivers to people living with Parkinson’s, and what the foundation does to help Parkinsonian family caregivers?

Joyce Oberdorf: Absolutely, Parkinson’s is a chronic neurogenic disease. That means that it is a marathon. It is a marathon on the part of the individual affected and it affects the entire family. So the entire family, over time, over five years, ten years, decades, gets involved in ensuring that this person is mobile, can get around, and they are not falling. Ensuring that they are not depressed, which can also happen. Their mood, their memory—it is a disease that affects every part of the body and, really, every part of the family.

So at NPF we recognize that. We have a comprehensive care model of an approach to care with disease. We promote this through our Centers of Excellence Network, and also through our Chapter Network throughout the U.S. And in both of those, we tend to offer a comprehensive care solution that focuses on the entire, the holistic approach, the individual and their needs. And the holistic approach to the family. Our chapters will offer education symposiums, they will offer support sessions for caregivers, sharing circles. For people with the disease, they will offer exercise and wellness classes...read more

Take Care

Gary Barg

ALZ Studies

Feature Article

Respite: Enjoy a Guilt-Free Time-Out
By Kate Murphy, RN

Why is it that the words “respite” and “guilt” seems to go hand in hand? Why do we as caregivers feel we are somehow failing our loved one by admitting that we need help, need time to recharge our batteries, or just need time to play a bit? Perhaps because so many of us still hold on to the myth that says the caregiver has to be...read more

LTC Insurance Quote

Guest Column

Traveling With a Person Who Has Alzheimer’s
By Joyce Simard

Being a caregiver doesn’t mean you have to give up life’s pleasures. You can still enjoy traveling with someone who is in the early stages of Alzheimer’s disease; it simply requires planning...read more


Dealing with Hearing Loss

Imagine trying to have a conversation and constantly having to ask your companions to repeat themselves; or not being able to participate in a group discussion in the common room...read more

Ties That Bind Ad



My 63-year-old, diabetic father-in-law has been staying with us a lot recently and his health is getting worse. If he wasn't with us today, he may have died due to the neglect of his family. What do I need to do in Kansas to become his caregiver? No one else in the family has the means to keep an eye on him or have him live with them. I'm still upset because we almost lost him. We have room in our home for him, but I wasn't sure if I can take a course as a caretaker and bring in addition income to support an extra non-working adult.  We can't support him on our own, but we can't leave him unattended either.  Please help me.

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Inside This Issue:

From the Editor
An Interview with
Joyce Oberdorf

Feature Article
Respite: Enjoy a
Guilt-Free Time-Out

Guest Column
Traveling With a Person Who Has Alzheimer’s

Dealing with
Hearing Loss


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Let's Talk - JUNE 2013

Has your loved one recently moved into a facility? Are you considering this kind of move? What are your challenges or concerns related to the move?

Share your story

Digital version of print magazine May/June 2013

May-June 2013 Cover 


Educate yourself & other caregivers on any medication given to a loved one. The internet is wonderful to help you...continued