Former First Lady Rosalynn Carter is
a pioneering caregiver advocate who has
been writing about and speaking out for
caregivers for close to thirty years.
Mrs. Carter is the president of the
board of the Rosalynn Carter Institute
for Human Development, which was
established in her honor in 1987. The
Institute’s mission includes promoting
the mental health and well-being of
individuals, families, and professional
caregivers; promulgating effective
caregiving practices; building public
awareness of caregiving needs; and
advancing public and social policies
that enhance caring communities.
Carter spoke with Editor-in-Chief Gary
Barg about her life as family caregiver
and the ongoing work for the Rosalynn
You and I first met in 1996, and
Today’s Caregiver magazine had just
begun to be published. I know when
we were first looking around in 1994
to see who was doing
anything to support caregivers, RCI
was the only organization that came
up over and over
Rosalynn Carter: As far
as we know, we were the first.
However, there was another
organization that started in
California; but when they first
began, they did just brain diseases
for a long time...continued
Choosing Well: Long-Term Care Facilities
By Hilary Gibson, Staff Writer
One of the hardest things a caregiver will ever have to do is to know when it’s time for their loved one to go into a long-term care facility. Often, caregivers will go long past the point of when they should have incorporated help from the outside. Sometimes, it’s their own fear of failing as a caregiver and the fear of letting someone down that stands between themselves, their loved ones, and an improved quality of life for both...continued
Caring at Work
By LeAnn Thieman
Are you one of the 65 million Americans who care for
a family member? One of the 20-50% of employees who tend
to a loved one before going to work, then return to care
again after a long hard day on the job? Feeling
torn between both “jobs” and trying to perform well at
each, causes so much stress that working caregivers are
often plagued with more mistakes, conflicts, and
Helping From Far AwayBy Kate Shuman
Because Americans have become such a transient culture,
adult children are now finding themselves having to deal
with an ever-growing crisis: taking on the new-found role as
long-distance caregiver. A recent study on long-distance
caregiving showed that the out-of-pocket expense of caring
for an elderly or physically challenged loved one who lives
more than an hour away has doubled since 1997...continued
I am a caregiver for my husband who has Parkinson’s
disease. He has other physical problems and is in a
wheelchair. How do you deal with yourself, your emotions,
making the shift from being a couple that was very active,
in a very good relationship, with good conversation? How do
I make the emotional shift from some of my dreams, some of
our dreams, to the daily routine of taking care, doing,
driving, becoming more and more responsible for his care.
Some days are so quiet, isolated. I don’t know quite how to
handle how much our life has changed because of the illness.
Some days, I just feel very tired and overwhelmed.
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