Okay, I have to
admit it, I was a little nervous about how well this new
session at our Fearless Caregiver Conference was going
to work out. After 45 of our own conferences and
keynoting over 100 other events, a pattern started to
emerge with regards to the concerns that I was hearing
from family caregivers. Most of the information
presented to caregivers at events including ours, have
to do with direct care issues: “How do I get dad to stop
driving?” “What is a living will?” “What are the
respite options in our community?” “How do I find the
best long term care facilities?”. These are all
perfectly reasonable and vital issues to cover in a
conference dedicated to family caregivers. But I slowly
realized that many other types of questions were being
asked about more general issues such as “What will
caregiving look like when my kids are caring for me?”
“How will any of this be funded?”
These are all big
picture issues, so who better to bring to an event than
the big picture people: leading non-profit healthcare
CEOs. Our luncheon panel of CEOs bravely opened
themselves up to being questioned by a room full of over 400
family caregivers and created a memorable hour and a
half for all involved. By all accounts it was truly a
tremendous session. The CEOs heard about issues of
importance directly from the caregivers and in return
they spoke from the heart about their thoughts of what
the future would look like for caregiving in the US.
Many eyes were opened and none were dry by the end of
lunch. To me, that room was filled to the brim with
healthcare CEOs, from the well-known ones with
multi-million dollar budgets to the hundreds of family
CEOs making life and death decisions for their loved
ones on a daily basis.
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Bipolar Disorder |
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Having been a caregiver for twelve years for my husband, Peter,
who died in June, 2001 of Parkinson's disease. ....Continued
Medication Reminder System
by Sandra Fuson, Staff Writer
Not taking prescribed medication – noncompliance – can have serious
health consequences. The reasons why people forget or don’t take
medications are varied.
Finding A Sense of Relief
by Jude Roberts, Staff Writer
Technology and medicine
have merged to create the PERS (personal emergency
Let's Not Talk About That Now...
By Jennifer Kay
Too often families do not like to talk about issues
surrounding death, dying and funerals. Why should they ask?
"I planned with my sister
for her to watch my husband on her day off and I treated myself to a
F r o m O u r R e a d e r s
I take care of my
sister-in-law who is BiPolar,
retarded and has sugar
problems. She's lived with
us two years now and none of
her family is willing to
help us. We ask if they
would watch her for a day or
two just to give us a break
and the answer is always
"NO...she is to hard to
watch". But the part that
gets me so upset is they are
always asking how much money
does she have in the
bank...where is all her
money going....she should be
eating this or that...she
should be using this laundry
picture? They refuse to help
or give us a break but are
always telling us how to
take care of her. Does
anyone else have this
problem...it just drives me
up a wall!!!
Thanks for listening.
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