How do you find the balance? Is there a balance? Am I
doing the right thing? Should I be doing more? These are
important questions for a caregiver. They can dominate a
caregiver’s daily thoughts. The experts all talk about
balance. How do we find the balance when we are so busy
doing the things that upset the balance?
Here is the
key: there is no magic answer. You may be searching for
an answer that is elusive and forever changing. Our
ability to handle all that comes our way changes over
time just as the needs of others around us change over
time.
Sometimes, just when we think we have a handle on
life, something changes and we have to start from
scratch.
Let me define
my view of balance. I believe we achieve balance when we
meet our own needs as well as the needs of those who
depend on us. What are our needs? Needs can be physical
(our general health), emotional (happiness, joy, love),
and material (housing, clothing). Some may want to add
spiritual needs as paramount in their lives as well.
Are caregivers meeting their own needs? Caregivers often
neglect their yearly check-ups although they would never
skip one for their loved ones. Caregivers often put
aside their own emotions as they devote their energy to
their loved one. Caregivers put off buying themselves
new clothes, or items needed because it is so hard to
get to a store by yourself and for yourself. When
attention is paid to caregiver needs, the caregiver
often thinks “Am I doing enough for my loved one?” and
this starts the guilt process.
How do we create a system to ensure that caregivers and
their loved ones both have their needs met? I suggest
keeping an accounting of sorts so that care you provide
for another can be matched with care you provide for
yourself. You can start with a journal and divide each
page in half. Put your loved one’s name on one side and
your name on the other. Did you help your loved one in
the shower? You can list that on the side under your
loved one’s name. Did you take the time to take a shower
yourself today? If yes, then list it on the side with
your name. If you enjoyed a nice lunch with your mother
today, you can list it on both sides. If you prepared
her lunch but never sat down yourself to eat, then your
side will run a deficit.
The activities you are writing down do not have to match
perfectly. For example, you may have played cards with
your father for his enjoyment. However, if this is not
relaxing or enjoyable to you personally, you cannot put
in on your side of the page. In this case, you need to
find a source of relaxation that you can put on your
side. For example, maybe you read for 30 minutes before
going to bed. This may be your source of relaxation.
Not all your activities or the time invested in each
will add up equally. In many circumstances, there are
not enough hours in the day to devote to yourself as you
devote to others. However, the goal is to try and create
a day that is shared with the one you love, not
dominated by your caregiving. You will become more
experienced at this as you practice. No caregiver can
create a perfectly balanced spread sheet the first time
out. The goal should be to continue trying so that you
can achieve more balance in meeting the needs of
yourself and your loved one.
By writing down the things you do for your loved one,
perhaps you will feel less guilty. Your early journals
may be very one-sided. Once you start to even things
out, you may realize that you can be a better caregiver
when there are some things you can list on your side.
Learn from this, being a good caregiver is not always
equal to the amount of care provided. If you are
constantly frazzled and stressed, the care you provide
may reflect your and anxiety and weariness. This may not
be the kind of caregiver you set out to be. If you
simply cannot balance the two sides to your journal, it
is definitely time to call in help. Respite care can be
what you need it to be, whether through a professional
organization or through family and friends. You can
contact your local Area Agency on Aging to learn more
about the Family Caregiver Support Program.
Professionals within this program can go over your
caregiving experience with you and find sources of
support you may not have known existed.
What do you do when your loved one’s demands are so
great, you have nothing to write on your side of the
page? Sometimes our loved ones have care needs that are
so extensive the demand on the caregiver is extreme.
Caregivers need to recognize that if the balance sheet
does not match up over time, the risk is far greater to
both of you. Acting preventively to keep from burning
out is a necessity. Caregivers who burn out are
sometimes too physically and or mentally exhausted to
provide any care.
It is hard to call in professionals when all your
mother wants is you. It is hard to say “no” to someone
you have loved all your life. If this is your
circumstance, putting things into perspective becomes
necessary. Let’s look at the case of providing care for
your parents. If your mother or father never said “no”
to you all your life, where would you be? Were you
allowed to go to school? Essentially, your care was
placed into the hands of others. At times you may not
have been happy about this but for the most part you
were probably safe and had your needs met. Did you ever
visit with friends or extended family? These times were
important in shaping your life. The same analogies can
be applied to care for those in need. If it is always
provided by one person, and in one way, it can rob both
individuals from opportunities needed to sustain
personal growth.
Start your balance sheet today. The search for balance
is hard but needs to continue. When we achieve a healthy
balance, the guilt will not feel as prevalent. The
answer is never obvious. As long as our search continues
and we keep our minds open to new ways to explore it,
balance is never that far away.
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