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The Jane Kaczmarek Interview (Page 2 of 3)

An Interview with Jane Kaczmarek

Jane Kaczmarek:  Itís actually the Movement Experience Exhibit.  People can walk through the experience of getting up out of a chair, getting in and out of a car, walking upstairs, and look at whatís involved in that process of movement. Itís an exhibit that is travelling around the country. One of the things they have is a 30-foot-long part of a leg, from the knee to the hip. People can actually walk through it and understand a little bit about how those joints are connected to what muscles and see how this whole thing holds together and works, and where relief from pain could come. If people go to the Web site, they can find out where this exhibit is going next. There is a lot of great information and doctors would be available in their area who would be able to talk to them about pain they might be having.  There is a list of resources and symptoms that they might be experiencing.  We are just trying to get the word out and hopefully people wonít have to suffer the way I did.

Gary Barg:  Well, this is a really big issue for family caregivers; we lift our loved ones, we move heavy equipment, we struggle with wheelchairs, but the first thing we donít do is care for ourselves.

Jane Kaczmarek:  Gary, you know, you really hit it on the head.  I just thought, Iím too young, this canít be happening to me, I am too busy, I have got these children, this job; I will just take more ibuprofen. I would organize my days so I could do as little as possible.  One of the things I remember was driving to the mall and I couldnít even walk through the length of it. I would park and get what I needed, then Iíd go back to the car and drive to the other side of the mall to get what I needed there. Or when I was coming down the steps in the morning from my second floor bedroom, I would take down absolutely everything I needed for the dayóbooks, change of clothes, sunglasses, anything that I might need because the idea of going upstairs to get anything was such a horrible idea.  I didnít want to have that happen until it was nighttime and I had to go to bed.  I think when people are busy, they find a million excuses not to take care of themselves.

Gary Barg:  I just actually spoke with a gentleman who had a hip replacement recently and he said that it seemed like his life started over.  He didnít have to make the walk arounds and the work- arounds anymore. 

Jane Kaczmarek:  I remember I would come into a room and immediately assess where there was a doorknob and where there was a counter and plan how I would kind of walk through.   Go over here and hang on for couple seconds, then go over there and hang on. Itís like being in a pinball machine.


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