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The Henry Winkler Interview (Page 2 of 3)

An Interview with Henry Winkler

Gary Barg:  And honestly, itís an emotional help, too, if you can imagine.
Henry Winkler: You know what?  That is exactly correct.  That, I think, is a major, major componentóthe emotional. 
Gary Barg:  They donít feel so helpless.
Henry Winkler:  You donít feel so helpless, you donít feel so freakish, you donít feel so different.  There was a woman I met in Texas who had her arm frozen to the side of her body and she called it her chicken wing.  Her children who had given up their social life to take care of her called it her chicken wing.  And you know, when she started the therapeutic use of Botox, she said, ďI havenít been able to put my arms around my girls for two years since the stroke. Itís amazingÖitís amazing.Ē  And you know what happens also that Iím privy to, that I am honored by?  People in the get-togethers that we have had all over the country stand up and give testimony about where they were and what has happened.  And itís almost, I donít want to say religious, but it is. Itís like a revival. 
Gary Barg:  Itís sharing.
Henry Winkler:  Itís sharing, but itís sharing this monumental change that they so appreciate.  Iíve never actually said that sentence, but that is the truth.
Gary Barg:  They bring something to the table that has helped them and again, giving is getting.  The other thing that I love so much about the Open Arms Campaign is that it allows the care recipient to partner with their family caregiver. 
Henry Winkler:  That is a very good way to say it.  All of a sudden, they become a part of the team as opposed to the object. 
Gary Barg:  It is often so difficult for a parent to see your kids caring for you.
Henry Winkler:  What about the parent caring for  the kid?  I just met a young man who was on his way to becoming a doctor like his dad.  His sisters are 14 and 15. They were on vacation when he was 18 or 19 and he had a stroke. He is working his way, fighting his way back. 

Gary Barg:  And he is affected by ULS?
Henry Winkler:  Yes.
Gary Barg:  Arenít people living with MS and some other diseases also affected by ULS?

 Henry Winkler:  There are so manyóhead injury, cerebral palsy, stroke, of course, spinal cord injury.
Gary Barg:  By the way, the stories on the campaignís Web site,, are the kind of stories we hear all the time through the Fearless Caregiver Conferences and Todayís Caregiver magazine, but the pictures of the family members are amazing.  You just see people getting part of their life back.  Do you meet a lot of family caregivers on the road?


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