Harry
Johns: The
impact, of course,
is aimed at raising
the level of
attention to the
disease. You know,
we have research
that indicates that
people have not been
as concerned about
the disease as about
other medical
issues, other health
causes. And we think
people should be as
concerned about
Alzheimer’s,
especially given the
devastating impact
to individuals to
the caregivers, to
whole families, and
to the country.
So that is really
the aim of the
campaign—to raise
the level of
attention and we
think we are doing
that. We are going
to continue to do
that because we
think it is critical
to moving the whole
cause forward, and
changing the course
of the disease both
in terms of people
who have it as well
as trying to keep
people from getting
the disease later.
So we are going to
continue that
effort. We think it
is succeeding. You
will see more of
that from us.
And what you say
about the equalizer
effect of the
disease—people
talking to David
Hyde Pierce or Leeza
Gibbons as though
they are fellow
caregivers instead
of as celebrities—is
right, of course.
And using those two
examples in
particular—I am sure
you have met them,
they both are great
people. They know
about this. Any of
us who have had a
loved one with this
disease does not
want others to have
it. We know what
others go through as
caregivers, as
family members—the
kind of emotional
and even physical
impacts it can have
on people. As you
well know, Gary,
there are studies
out there that
indicate there is a
greater incidence of
death for the
nonhospitalized
partner than for the
one who is
hospitalized.
Gary
Barg: The
Stanford study that
shows that 40
percent of people
with loved ones with
cognitive disorders
are going to die
before the person
for whom they care.
Harry
Johns:
Right.
Gary
Barg: We
talk about that at
the Fearless
Caregiver
Conferences and it
is always a show
stopper. It gets
people’s attention.
Harry
Johns: Oh,
it is amazing.
Coming to this role,
it has been one of
the most negatively
impressive things to
me. It is such an
impact on the
families, on the
caregivers. A lot of
people who are
caring for someone
with Alzheimer’s or
dementia can wind up
doing it not only
forty hours a week,
not only 36 hours a
day. A third of
those people do it
for five years or
more.
I think those
champions, the David
Hyde Pierces and
those folks who step
up to talk about the
disease, really do
see it the way all
the rest of us see
it. And they help us
communicate that
message to others
who have not yet
seen it in the same
way, so that we can
ultimately get the
entire country, and
again policy makers,
to recognize it and
act on it in ways
that will change it
for caregivers today
and for the disease
tomorrow.