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What Now?
Although it is a difficult subject to
talk about, your loved one’s end-of-life wishes should
be discussed now. So many families never touch on this
subject, and, then at the time of death, quick decisions
must be made quickly through a veil of grief. Honor your
loved one’s memory by finding out now what they want.
Learning more about your loved one’s condition is easier
than ever thanks to a little invention called the
Internet. Although it may be difficult to find many web
sites on the specific condition MCI, there are numerous
web sites on Alzheimer’s disease and all of its stages.
When you learn about your loved one’s condition and then
pass on that information to your family and friends you
become an advocate for your loved one and his or her
condition. Advocates can affect changes in the quality
of care and even legislature, and it is one of the most
important things you can do for both of you. Somewhere
along the path of your education, you will find out all
you can about the treatments presently used for your
loved one’s condition. Because MCI is a relatively new
concept, doctors use the medications and treatments that
have been designated for AD. There is no cure yet, but
the medications used now can slow the progression for up
to almost two years. This can keep your loved one at
home for longer and give you more quality time together.
AD, of which MCI is a part, is one of the most
researched diseases in the world. There are numerous
local and national research projects in progress, and
most of these include clinical trials. You might
consider a clinical trial for your loved one for several
reasons:
Active participation in your loved one’s health care
Getting your loved one the finest medical care at
leading facilities
Your loved one being the first to benefit from
treatments not yet available to the public
Helping others
Of course you and your loved one must give informed
consent. But think of all the good you could do—not only
for yourselves, but for future generations. Once again,
it’s about taking charge and advocating for your loved
one’s care.
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