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By Amelia Owen
Curled up under a hospital blanket in the large
recliner with her workbook from school, she awakened to
the sound of the nurse measuring her mother’s blood
pressure and temperature. The glow from the TV and the
methodical pumping of the oxygen machine had lulled her
to sleep as she worked on her homework. At first, she
could not make out the strange environment. Her memory
of the situation came back as she rubbed her eyes and
focused on the strange, yet familiar face of the night
nurse caring for her mother, recognizing the beeps of
the heart monitor and the other unknown, nonetheless
purposeful machines. The nurse tenderly looked at the
little girl, and the girl repaid the nurse’s sympathetic
gesture with a yawn and smile to let her know she was
ok, all in silence so as to not wake her recovering
mother.
The little
girl sat up to observe this procedure she had seen
numerous nurses perform on a regular basis since her
mother’s double radical mastectomy. Each time something
was done to her mother, the girl’s curiosity increased.
She watched with growing intent every sequence of steps
of the nurses’ duties. Paying attention to the responses
the nurses gave to each of her mother’s needs and
requests, she examined their every action as each task
was routinely completed. It was not so much with a
critical eye she attended these activities, but a sense
of protection with a fascination and determination to
learn and help. She began to ask questions about the
nurses' job because deep inside her eleven year old
psyche dwelt a strong resolution to be a part of the
team helping her mother heal. And she did. She started
measuring bags with drainage of fluid, taking
temperatures, refilling ice pitchers, rinsing unusually
shaped bowls, brushing her hair, wetting toothbrushes,
getting this and that, fluffing pillows, and drawing
blankets. Despite her limitations in knowledge,
training, and age, she soon became known as Mom’s Little
Nurse. Little Nurse relieved some of the small, tedious
burdens her mother's care required, giving her father
the ability to work his full-time job and run the family
business her mother had taken care of prior to her
diagnosis and had to abandon temporarily in order to
fight her battle with cancer.
This scene is
probably more common than one would expect. For various
reasons, more adult patients require care from family
members. Usually, one thinks this care would be provided
by a spouse, sibling, or friend - an adult . This, more
than often, is not the case. According to the National
Alliance for Caregiving and the United Hospital Fund,
"nationwide, there are approximately 1.3 to 1.4 million
child caregivers who are between the ages of 8 and 18.
The outcomes of this responsibility can be severe. The
report states that "they are more likely than
non-caregivers to have trouble getting along with
teachers, to bully or act mean towards others, to be
disobedient at school, and to associate with kids who
get in trouble. A number of other studies focus on the
effects of severe, life-threatening disease diagnoses on
the patients' children.
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