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Support Group Savvy
By Kristine Dwyer, Staff Writer
Generally, online participation is free
and can be accessed through any computer system,
although registration may be a prerequisite to joining
an online group. Be sure to read each site’s guidelines
for participation and their privacy policies, learn how
to enroll or un-enroll, and identify who sponsors the
group.
Caregivers and others report that they prefer the
flexibility, convenience, anonymity and value of
connecting with and hearing from a large, diverse group
of people online. They can find a community of support
right at their fingertips from peers and professionals
across the nation and even throughout the world.
Another invaluable feature of the computer age is the
wealth of knowledge that can be accessed online. Useful
resources, newsletters, connections to disease-specific
sites, medical and research updates and self-care tips
are just a few examples of additional wisdom available
on the internet.
Attending a Group Together
Chronic conditions become family conditions and what
affects one will in some way affect others in the family
system. For this reason, many settings encourage family
participation to gain information and support. Some
support groups, such as those for Parkinson’s disease,
MS and cancer, especially encourage caregivers or “care
partners” to attend meetings along with their loved one
who is living with a disability or chronic illness.
Learning together and receiving support together keeps
people focused and helps to equalize the disease
experience for all who are involved. This mutual
encounter offers immeasurable benefits to both parties
and creates a solidarity that can carry couples and
families through the peaks and valleys of a health
condition.
Caregiving is like a kaleidoscope that
continually changes dimensions with each turn.
Throughout this uncertain journey, receiving support
from others may be the one constant factor that keeps
you on track. Whether you attend a group alone or with
your loved one or prefer to find support online,
choosing a support group that feels right for you is the
most important decision.
Search for support groups available online or try these
suggested sites for Internet support:
www.caregiver.com
www.cancercare.org
www.alz.org
www.parkinson.org
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