ARTICLES / General /Clinical
Trial Rundown /
Other ArticlesBy Jennifer Bradley, Staff Writer
Pros and Cons
Many people enjoy participation in clinical
trials because they feel compelled to the greater
good. They believe this trial could help them and
also those who will be diagnosed with Parkinson’s in
the future. They realize that the medications and
treatments available to them currently are only
because others volunteered for previous clinical
trials.
In addition, there is a great benefit to being
treated by leading health care professionals. A
loved one will be surrounded by the cutting-edge new
treatments, at no cost. They will gain knowledge and
understanding about Parkinson’s in general and how
their body responds to treatment.
Being a part of a clinical trial can change the
schedule of a loved one and most likely, a caregiver
too. Depending on the nature of the trial, a loved
one with Parkinson’s may need extra help with
transportation to and from multiple appointments.
A trial participant still works with their primary
medical provider as well as the study team. It is a
great opportunity to learn and receive care many
others with the same disease will not have access
to.
A Caregiver’s Role in a Clinical Trial
Communicating During the Study
When your loved one is a study participant,
communication is essential. Make sure to talk often
about their feelings throughout the study. Be
aware of what your loved one is thinking and
feeling. You should discuss feelings when they
arise, while appreciating the need for personal
privacy. Remember to always respect your loved
one’s ability to make their own decisions.
Recognize that negative emotions can arise for
both you and your loved one. It is OK for either of
you to feel sad or frustrated. Expressing these
emotions is, in fact, healthy and normal.
Other ways to keep communication flowing
smoothly:
Encourage your loved one to keep a journal.
You can also discuss your loved one’s diary
entries for the study or help your loved one to
fill out the diary.
Set aside time each day or week to talk
about the most recent study visit.
Learn basic relaxation techniques to keep
tension and stress low.
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