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Planning For the Future
with a Special Needs Child - Part 1
The Child’s Long-Term Needs

By Harry S. Margolis and Eric Prichard

(Page 2 of 3)

Supplemental needs trusts are one of the most important parts of a parent’s estate plan because they allow maximum flexibility to manage a child’s care during every stage of her development. Typically, when you think of leaving an inheritance, you picture a dusty law office, the opening of a cracked will, and bingo - everyone gets their share. For parents of children with special needs, however, it is imperative that the share meant for the child with a disability flow directly into a supplemental needs trust in order to protect the child’s benefits. A qualified attorney can correctly set up your will to accomplish this.

Provided the trusts contain the appropriate language, funds from a retirement plan or life insurance policy, not just from a parent’s probate estate, can flow directly into the trust when a parent passes away, avoiding a potential loss of benefits should the child receive the money outright. Furthermore, trusts allow parents to make their intentions and caregiving goals clear. While a trustee must have independent discretion to distribute the funds to or for the benefit of the person with special needs, the trust can outline the child’s needs, the parent’s wishes, and can even include a special group of family friends and relatives called trust advisors who consult with the trustee on matters related to the beneficiary’s care. In other words, trusts are incredibly flexible and must be included in any responsible estate plan.

There are two main types of supplemental needs trusts. 

The first, called a third-party trust, can be set up by any family member for the benefit of the person with special needs. Funds contributed to this trust are used to pay for additional care and services for a beneficiary, and are not considered the beneficiary’s assets for purposes of determining eligibility for government benefits. Theoretically, a parent or grandparent could deposit millions of dollars into a third-party supplemental needs trust and their child or grandchild would still qualify for benefits if necessary (although in this case, using the funds to provide superior private health insurance or housing may be a better idea).

The second type of trust is called a first-party or (d)(4)(A) trust. The key difference between a first-party trust and a third-party trust is that the former is designed to hold a beneficiary’s own assets, not funds donated by others. Even though the trust is designed to hold the beneficiary’s own funds, due to a quirk in federal law, the trust must be created by a parent, grandparent, or a court - the beneficiary cannot do it. These trusts are typically used when someone with special needs receives a large accident settlement or inheritance in her own name, or when someone who had been healthy and working becomes disabled through an injury or illness. While depositing funds into a first-party trust will allow a person to qualify for government benefits, the trust must provide that if any money remains in the trust when the beneficiary dies, it must first be used to reimburse the state for Medicaid paid out on the beneficiary’s behalf. If funds remain after such reimbursement, they can then go to other family members.  Because of this provision, parents or other relatives of a person with special needs should never leave money directly to a beneficiary - they should establish their own third-party trust to hold the funds, avoiding the 
payback provision.

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