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Wednesday, January 17,  2007 - Issue #310

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From The Editor


res·pite   (rěs'pĭt)  
n.  

1.  A usually short interval of rest or relief.
2.  Law Temporary suspension of a death sentence; a reprieve.

The American Heritage® Dictionary of the English Language

Or my favorite definition of respite which comes from the ARCH National Respite Network:  “Respite is temporary relief for caregivers and families who are caring for those with disabilities, chronic or terminal illnesses, or the elderly”.

How about a nice bit of news to start the year off with?  Our heartfelt congratulations to Jill Kagan and The Lifespan Respite Task Force, a coalition of over 170 national, state, and local organizations, for their tireless work over the past few years which culminated in President Bush’s signature on a new law, The Lifespan Respite Care Act of 2006 (HR 3248 ). The bill was introduced and championed in the US House of Representatives by Rep. Mike Ferguson (R-NJ) and James Langevin (D-RI). A companion bill in the Senate was cosponsored by Senator Hillary Clinton (D-NY) and Senator John Warner (R-VA).

As you well know, even though most caregiving families take great joy in providing care to our loved ones so that they can remain at home, the physical, emotional and financial consequences can be overwhelming without some support, such as respite care.  

This new law would authorize $289 million over five years for state grants to develop Lifespan Respite Programs to help caregiving families access quality, affordable respite care. 

When the bill passed the House, Rep. Ferguson, whose own father was a caregiver for his ill mother for 6 years said , “Today's action by the House of Representatives represents not only an important victory for family caregivers nationwide, but it also sends America's caregivers a clear message: Your selfless sacrifice is appreciated, and help is on the way.” 

Well, it seems as if the cavalry is finally coming and not a moment too soon.  

 

Take care
Gary Barg

Editor-in-Chief
gary@caregiver.com
 


 

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Feature Article

One Miraculous Organ
by Frances Maguire Paist, Staff Writer

 

Perhaps the well-known song expresses it best. “Let’s start at the very beginning, a very good place to start.  . .....Continued


Additional Articles:

Understanding Challenging Behavior
By Sharon Roth Maguire MS, APRN-BC, GNP, APNP

While being a caregiver to unusual or so-called “difficult” behaviors, it is quite common for persons with dementia to display these types of behaviors   ...Continued


Hope: The Most Caring Gift
by the Rev. A. Stephen Pieters


In AIDS caregiving, the most caring gift is hope. In my twenty years as a pastor and chaplain, and in my fifteen years as a person living with AIDS, ....Continued

 

Guest Column

Unresolved Issues
in Family Caregiving

by Kristine Dwyer, LSW, and Douglas Heck, PhD

 

The phone call came on a misty Sunday morning. Mary’s mother had fallen at home and was hospitalized with severe injuries. . ..Continued


Caretips

Those Inexplicable Instructions!
By Dr. Barry Tepperman

It happens to every caregiver. You're at the doctor's with your loved one.   ...Continued


 

Carenotes

Hi,  I need advice. My mom is 75 and has moderate to severe dementia. On my recent visit it seemed that as opposed to laughing and comforting her she was very upset with the fact that I was not living next door and it appeared that by the time I left, she was in a worse way than before I came. She tried to bite the care giver, called the police, etc. My question is, am I causing more harm than good by making 3 and 4 day visits numerous times a year? She calls my sister saying 'he lives in NY so I lost a son', etc. When I call with regularity she starts getting very depressed (caregiver tells me too) so I now call less frequently and call the caregiver to check up on her. Any thoughts?

MU

 

Answer This Week's CareNote:
carenotes/2007/index.htm

 

 


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Inside This Issue:

From the Editor
Res·pite   (Rěs'pĭt) Feature Article
One Miraculous Organ
Guest Column
Unresolved Issues
in Family Caregiving

CareTips
Carenotes


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