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From The Editor |
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res·pite (rěs'pĭt)
n.
1.
A usually short
interval of rest or relief. 2. Law Temporary suspension of a death sentence;
a reprieve.
The American Heritage®
Dictionary of the English Language
Or my favorite definition of
respite which comes from the ARCH National Respite Network:
“Respite is temporary relief for caregivers and families
who are caring for those with disabilities, chronic or
terminal illnesses, or the elderly”.
How about a nice bit of news
to start the year off with? Our heartfelt congratulations
to Jill Kagan and The Lifespan Respite Task Force, a
coalition of over 170 national, state, and local
organizations, for their tireless work over the past few
years which culminated in President Bush’s signature on a
new law, The Lifespan Respite Care Act of 2006 (HR 3248 ).
The bill was introduced and championed in the US House of
Representatives by Rep. Mike Ferguson (R-NJ) and James
Langevin (D-RI). A companion bill in the Senate was
cosponsored by Senator Hillary Clinton (D-NY) and Senator
John Warner (R-VA).
As you well know, even though
most caregiving families take great joy in providing care to
our loved ones so that they can remain at home, the
physical, emotional and financial consequences can be
overwhelming without some support, such as respite care.
This new law would authorize
$289 million over five years for state grants to develop
Lifespan Respite Programs to help caregiving families access
quality, affordable respite care.
When the bill passed the
House, Rep. Ferguson, whose own father was a caregiver for
his ill mother for 6 years said , “Today's action by the
House of Representatives represents not only an important
victory for family caregivers nationwide, but it also sends
America's caregivers a clear message: Your selfless
sacrifice is appreciated, and help is on the way.”
Well, it seems as if the
cavalry is finally coming and not a moment too soon.
Take care Gary Barg Editor-in-Chief
gary@caregiver.com
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Feature
Article |
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One Miraculous Organ
by Frances Maguire Paist, Staff Writer |
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Perhaps the well-known song expresses it best. “Let’s start at
the very beginning, a very good place to start.
.
.....Continued |
Additional Articles:
Understanding
Challenging Behavior
By Sharon Roth Maguire MS, APRN-BC, GNP, APNP
While being a caregiver to unusual or
so-called “difficult” behaviors, it is quite common for persons with
dementia to display these types of behaviors
...Continued
Hope: The Most Caring Gift
by the Rev. A. Stephen Pieters
In AIDS caregiving, the most caring gift is hope. In my twenty years
as a pastor and chaplain, and in my fifteen years as a person living
with AIDS, ....Continued
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Guest Column |
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Unresolved Issues
in Family Caregiving
by
Kristine Dwyer, LSW, and Douglas Heck, PhD |
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The phone call came on a misty Sunday morning. Mary’s mother had
fallen at home and was hospitalized with severe injuries.
.
..Continued |
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Caretips |
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Those Inexplicable Instructions!
By Dr. Barry Tepperman
It happens to
every caregiver. You're at the doctor's with your
loved one. ...Continued
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Carenotes |
Hi,
I need advice. My mom is 75
and has moderate to severe
dementia. On my recent visit
it seemed that as opposed to
laughing and comforting her
she was very upset with the
fact that I was not living
next door and it appeared
that by the time I left, she
was in a worse way than
before I came. She tried to
bite the care giver, called
the police, etc. My question
is, am I causing more harm
than good by making 3 and 4
day visits numerous times a
year? She calls my sister
saying 'he lives in NY so I
lost a son', etc. When I
call with regularity she
starts getting very
depressed (caregiver tells
me too) so I now call less
frequently and call the
caregiver to check up on
her. Any thoughts?
MU
Answer This Week's CareNote:
carenotes/2007/index.htm
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