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Huntington's Disease: Tips for Coping /
Other ArticlesHuntington's Disease: Tips for Coping
By Heather Pratt
Some of the suggestions I have for
living with HD are:
Keep life simple - Rest, Exercise, Nutrition, A daily
laugh Carry earplugs with you when you are out (Some
people with HD are sensitive to noise)
Carry calendars with you to write down everything you
must do for the day and any information you get from
other people
Develop a message centre in your home, so other family
members have an idea where to look for stuff
Use an answering machine so you can rewind the tape and
recheck those messages (One of the symptoms of HD is
transposing numbers)
Use sticky 3M note pads to keep your place in cookbooks
- also works in crochet or knitting patterns
Use one color of paper for phone messages Have a
check-list on the front door so you can make sure you
have keys, etc.
Rewrite recipes so they have a numbering system (1. Cut
vegetables, 2. Spray pan, etc.)
Try to do the same task on the same day of each week
(Wash on Tuesday, etc.)
Get a watch with an alarm clock and set the alarm to
remind you to catch bus, leave for doctor's appointment,
etc.
Listen to relaxing music
Reprinted by permission of Heather Pratt who has
Huntington's Disease, www.lib.uchicago.edu/~rd13/hd/living2.html
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